Pharmaceutical manufacturers often look to patient advocates for help winning approval for new drugs. Their most recent success in this area was the FDA’s approval of a new drug for Duchenne muscular dystrophy. That decision came despite recommendations against approval from FDA staff. In an editorial, the Boston Globe questioned the FDA’s move while noting … Continue reading Two Boston meetings look at the role of patient advocates. They offer two very different perspectives.
Searching for health care services on the Internet can be like searching info about food, hotels or pets. You have to sort through a lot of low quality or scraped sites that don't offer much. Healthcare Compass looks like a good destination for Bay Staters. On this website, there are two different ways to compare … Continue reading Compare Massachusetts doctors via quality reports and patient feedback
Check out #chs11 f for tweet from the Connected Health Symposium in Boston. Each year, Partners sponsors this meeting to look at how the Internet and mobile communication are changing the health care system. Here's a link to the Tweetstream and a few samples below from a session on social networking and health. “ RT … Continue reading Tweets from Boston meeting on health, the Internet and mobile communication
"Unconference, " "NERD center" and "Health Foo." Find our what all that means and more in report on last weekend's Cambridge, Massachusetts meeting on health care and the web. Or, as defined by the site "a cross-discipline, immersive, informal 'unconference' that will take advantage of a growing interest in applying Web 2.0 and open-source thinking in health care to … Continue reading In Cambridge, Mass., an “unconference” on #healthcare and the web #hit #healthfoo