From HSPH: The Boston Marathon Bombings: Lessons Learned for Saving Lives

From Harvard and WBUR via HSPH Forum series. Link to live chat archive here.

PARTICIPANTS

  • James Hooley - Chief, Boston EMS
  • JudyAnn Bigby - Former Massachusetts Secretary of Health and Human Services
  • Paul Biddinger - Director, Emergency Preparedness and Response Exercise Program, Harvard School of Public Health, and Chief, Division of Emergency Preparedness, Massachusetts General Hospital
  • Leonard Marcus - Co-Director, National Preparedness Leadership Initiative
  • Don Boyce - Director of the Office of Emerge

BIDMC’s Haider Warraich in the NYTimes on how false hope harms patients

The NY Times offers a piece in the Sunday Review urging doctors to be straight with dying patients. From BIDMC doc (and novelist) Haider Javed Warraich:

bidmc logoA study of cancer patients and their doctors in the Annals of Internal Medicine a year later found that many doctors didn’t quite tell patients the truth about their prognosis. Doctors were up front about their patients’ estimated survival 37 percent of the time; refused to give any estimate 23 percent of the time; and told patients something else 40 percent of the time. Around 70 percent of the discrepant estimates were overly optimistic.

This optimism is far from harmless. It drives doctors to endorse treatments that most likely won’t save patients’ lives, but may cause them unnecessary suffering and inch their families toward medical bankruptcy.

One source of this optimism is pop culture, which frequently depicts heroic recoveries from seemingly life-threatening situations. Another is the medical school experience. What motivates weary medical students is the hope that one day interventions they perform will save lives, heal families and enact cosmic good.

Haider Warraich also had a piece two weeks ago about witnessing the aftermath of one of the marathon bombs. He had lived through war and violence growing up in Pakistan, he wrote. It did little to prepare him for the Boston blast beyond heightening his fear of looking like a suspect.

More on Warraich and the marathon  from Slate and a bit of audio from The World.

Local reporters, editors, data crunchers win health journalism awards

A lot of the heath care journalism awards out there are kind of soft — they come from trade or industry groups. They have their own place on our walls, and, in some cases, we appreciate them. (In other cases, an award may represent a conflict of interest.  An award from an institutions you cover? Just say no. )

But the Association of Healthcare Journalists awards come with a lot of cred. And the  New England awards are well deserved. Congratulations colleagues. We get a chance to thank you in person when the AHCJ holds its annual meeting in Boston in two weeks.

ahcj awards-logo

Public Health (Large)

First: Coverage of Fungal Meningitis Outbreak Tied to Contaminated Drugs; Staff, The Boston Globe

Honorable mention: Cancer’s New Battleground: The Developing World; Joanne Silberner, David Baron, PRI’s The World

Consumer/Feature (Large)

Third: A Rampant Prescription, a Hidden Peril; Kay Lazar, Matt Carroll, The Boston Globe

Consumer/Feature (Small)

Second: Gift from Grief; Michael Morton, MetroWest Daily News (Framingham, Mass.)

Third: Demand for Home Care Workers Soaring, But Will There Be Enough Takers?; Arielle Levin Becker, The Connecticut Mirror

 Special citation: 40% of High-Prescribing Docs Get Pharma Perks; Lisa Chedekel, The Connecticut Health Investigative Team

Essay contest — Tell a story about the cost of your health care and win $$$ #hcr #healthreform #aca

Ever feel like your doctor has no sense of the cost of the prescription, treatment or scan he or she is ordering? In an ideal word, doctors shouldn’t take cost into consideration when choosing care.

But the health care system doesn’t operate in the real world and often that scan doesn’t represent the best care. And, even insured pateints are in for huge copays and deductibles.

Costs of Care is a Boston group that dares to give “patients and their caregivers information they need to deflate medical bills, while expanding the national discourse on the role of care providers in responsible resource stewardship.”

 Their effort is part of a new push for transparency in health care pricing.

So, you’re thinking – that sounds familiar? Why didn’t my doc explain the difference in costs when he asked me which hospitals I wanted to go to form my surgery?

 Now’s your chance to share that story. The folks at Costs of Care is sponsoring their third annual essay project and they are looking to stories “that best demonstrate the importance of cost-awareness in medicine. Examples may include a time a patient tried to find out what a test or treatment would cost but was unable to do so, a time that caring for a patient generated an unexpectedly a high medical bill, or a time a patient and care provider figured out a way to save money while still delivering high-value care.”

 Check out last year’s winners here: www.costsofcare.blogspot.com Entries are due November 15 and all “qualifying submissions” appear on the group’s website. The prize –$4,000.

Note that the contest is sponsored by a slew of insurance companies and Beth Israel Deaconess Medical Center. We note that Partners – famous for its high cost care — is not a sponsor.

The group notes that the stories have been used by “the major media and have been used by leading healthcare organizations such as the New England Journal of Medicine and the Institute of Medicine.”

So best not to sign up if you are shy. For more info click here or go to www.CostsOfCare.org. Or, check out their Facebook page.

The Globe on alarm fatigue, HIT and a hit to the hospital association

Lack of autopsies = missed medical errors: a Pro Publica investigation

This story notes that “when patients were autopsied, major errors related to the principle diagnosis or underlying cause of death were found in one of four cases. In one of 10 cases, the error appeared severe enough to have led to the patient’s death.”

So, it is bad news that all of the New England states report low autopsy rates in cases of unexpected deaths. Personally, it’s sad that NC also reports a low rate.  The Raleigh News & Observer  did a similar same story in 1995.

Without Autopsies, Hospitals Bury Their Mistakes

by Marshall Allen ProPublica, Dec. 15, 2011, 12:36 p.m.by Marshall Allen, ProPublica, Dec. 15

When Renee Royak-Schaler unexpectedly collapsed and died on May 22, no one ordered anautopsy.

Not the doctors at Howard County General Hospital in Columbia, Md., where the 64-year-old professor and cancer researcher was pronounced dead.

Not the Maryland Office of the Chief Medical Examiner, which passed on the case because no foul play was involved.

And not Royak-Schaler’s physicians at Johns Hopkins University School of Medicine who had diagnosed cancer in her hip two days beforehand but acknowledged they didn’t know what had caused her unforeseen death.

A half-century ago, an autopsy would have been routine. Autopsies, sometimes called the ultimate medical audit, were an integral part of American health care, performed on roughly half of all patients who died in hospitals. Today, data from the Centers for Disease Control and Prevention show, they are conducted on about 5 percent of such patients.

As Royak-Schaler’s husband, Jeffrey Schaler, discovered, even sudden unexpected deaths do not trigger postmortem reviews. Hospitals are not required to offer or perform autopsies. Insurers don’t pay for them. Some facilities and doctors shy away from them, fearing they may reveal malpractice. The downward trend is well-known — it’s been studied for years.

What has not been appreciated, pathologists and public health officials say, are the far-reaching consequences for U.S. health care of minuscule autopsy rates.

Diagnostic errors,which studies show are common, go undiscovered, allowing physicians to practice on other patients with a false sense of security. Opportunities are lost tolearn about the effectiveness of medical treatments and the progression ofdiseases. Inaccurate information winds up on death certificates, undermining thereliability of crucial health statistics.

It was only because of Royak-Schaler’s connections that her case ended differently. Her colleagues at the University of Maryland School of Medicine urged her husband to authorize an autopsy and volunteered to conduct it for free.

In her case, as in so many, the autopsy revealed a surprise: Royak-Schaler, the renowned cancer researcher, had cancer ravaging her body — in her lungs, kidneys ,abdomen and the marrow of her bones. A blood clot, likely related to thetumors, caused her sudden death.

Jeffrey Schaler has wrestled with anger that his wife wasn’t diagnosed sooner but said knowing how she died was better than not.

“There’s a sense of peace that accompanies that knowledge,” he said.

For the last year, ProPublica, PBS “Frontline” and NPR have probed America’s deeply flawed system of death investigation [1], focusing primarily on forensic autopsies, which are conducted by coroners’ offices and medical examiners when there is suspicion of an unnatural death. State laws vary, but the preponderance of deaths that occur in hospitals are considered natural. Whendeaths are unexplained, unobserved or within 24 hours of admission, hospitalsmay be required to report them to local coroners or medical examiners, but such  agencies rarely take hospital cases.

Read the rest of this entry »

Best in the biz in new book on medical errors

We’re saps for top ten lists, even though we find the gimmick annoying. But, we are big fans of Joe and Terry Graedon. We’ve been following both the print and radio versions of “The People’s Pharmacy” since our days in the NC’s Research Triangle. They offer solid advice about meds
and also know the difference between quackery and home remedies. And where else
can you get Milk of Magnesia deodorant?

So we can forgive all  18 top ten lists in their new book “Top Screwups Doctors Make and How to Avoid Them.” Joe Graedon believes his mother’s 1996 death was caused by medical errors at Duke Hospitals. But, instead of suing, he tells the tale of how he and his partner/wife worked with Duke to improve care. They describe it as a “slow and frustrating” process, but think that Duke Hospital is now a safer place.

So, we offer this link and note the Boston contributors to the book. They include Harvard’s Jerry Avorn and David Bates, the head of The Center for Patient Safety Research and Practice at the Brigham.  Also contributing, couple of the best sources on drug safety around – Curt Furberg of the Wake Forest School of Medicine and Thomas Moore of the Institute for Safe Medicine Practices.

We refer you to these Demon Deacons and the Blue Devils with one caveat: Go Heels! We’ve got a UNC grad/NC native in the family. So, while he’s a Tar Heel born and a Tar Heel bred, here’s hoping that medical mistake will never render him Tar Heel dead.

Mass. single-payer advocates take on limits of state health reform

Before you write off these folks, note that a recent survey of doctors by the Massachusetts Medical Society found that a growing number of doctors support the idea of a single-payer system. More than 40 percent, up from  34 percent last year. So do a lot of folks at Occupy Boston.

Massachusetts Health Reform in Practice and The Future of National Health Reform

OVERVIEW: While the Massachusetts health reform law of 2006, widely regarded as the model for the new federal health law, reduced the uninsured population in the state, it did so at the cost of rapidly rising underinsurance, increased health care premiums, and a financial crisis among the state’s safety-net hospitals and community health centers. And the financial burden of the reform has fallen disproportionately on lower-middle-class families.

Those are some of the findings in a new, exhaustively documented report on the outcomes of the Massachusetts reform law released by Mass-Care and Massachusetts Physicians for a National Health Program. The report draws on hundreds of sources, including academic studies, government statistics and scientific surveys, in the first compilation of its kind.

EXECUTIVE SUMMARY

The Massachusetts Health Reform Law of 2006 expanded Medicaid coverage for the poor and made available publicly subsidized private health insurance for additional low-income residents of the state. It also mandated that all but the poorest uninsured residents either purchase private health insurance or pay a substantial fine (up to $1,212 in 2011). Smaller fines (up to $295 per employee) were also levied on employers who fail to offer insurance.

Four years after full implementation of the law, Massachusetts has not achieved universal coverage, although one-half to two-thirds of the previously uninsured now have some type of insurance policy. Most of the gains in coverage have come from expansions in publicly subsidized insurance. This largely represented a shift of patients from the state’s former Free Care Pool, which compensated hospitals and community health centers directly for care of the uninsured, to private insurance plans, which is a more costly way to provide care. The reform did not lead to a sustained increase in employer-sponsored coverage, but did slow declining employer coverage. Instead of dropping coverage, employers in Massachusetts have increased cost sharing, shifting costs on to employees, leading to rapidly rising underinsurance after health reform. The use of high-deductible plans more than tripled for residents with private insurance, and good insurance coverage at small businesses all but disappeared over a few short years after reform.

Reform has had a positive impact on access to care in the state, but this impact has affected a modest share of residents, and for some patients has been negative. For example, some low-income patients who previously received completely free care under the state’s prior free care program faced new co-payments and premiums after becoming insured, which impeded their access to care. Reform has not reduced the burden of medical bills and medical bankruptcy on Massachusetts’ families.

The growth of residents with insurance coverage has exacerbated a primary care shortage in Massachusetts by increasing wait times for appointments and decreasing the portion of physicians accepting new patients, creating access problems even for those with coverage. Reform did not reverse growing use of the state’s emergency departments for care, despite expectations that expanding insurance coverage would reroute patients through primary care offices. There is no evidence as of yet that expanding insurance coverage has had an impact on health outcomes or disparities in health outcomes. Reform has also created a financial crisis for safety net providers that specialize in care for low-income communities and the uninsured, by shifting resources away from safety net providers while patient demand for safety net care has actually increased.

The public cost of reform has been high, exceeding $800 million in fiscal 2009 for a state with a total budget of $32.5 billion.  However, federal taxpayers paid for the bulk of the law’s public expenses. The state has made a broad range of cuts to the original law in order to its keep costs down, cutting back coverage for over 30,000 documented immigrants, curtailing some benefits, increasing cost sharing, and increasing the share of enrollees required to pay premiums. Substantial funds from the federal stimulus bill were also used to sustain the reform law, but this was a short-term fix only.

Public payments account for only a portion of the reform law’s costs. A central premise of the law was that the state, employers, and individuals would all have to sacrifice financially to approach the goal of universal coverage. This premise of “shared responsibility” for the costs of the reform was in many ways disingenuous. Although employers, individuals, state and federal government have shared the burden of increased costs roughly equally, this overlooks the fact that governments pass on their spending to taxpayers, and employers pass on their costs to employees.  The actual burden of health reform was regressive, with increased spending after health reform falling disproportionately on lower-middle income residents.

The reform failed to “bend the cost curve” in Massachusetts because it contained no significant cost-control provisions. Health care costs in Massachusetts are higher than in any other state in the nation, and reform has been found to accelerate the rising costs of employer-sponsored health care. There is general agreement that the Massachusetts reform is itself not sustainable without effective cost control.

Massachusetts enjoyed favorable circumstances at the outset of reform, such as previously high levels of spending on health care for the poor, high personal incomes, and relatively low rates of uninsurance. Without controlling costs, national reform will run up against the same difficulties as Massachusetts: growth in public insurance coverage will prove unsustainable and will accompany the rapid erosion of private insurance benefits, while modest gains in access to care will be threatened in the short term by unsustainably high costs that are increasingly shifted on to patients.

While Massachusetts health reform has enjoyed support from a majority of residents in the state, that support has declined since national health reform instigated a broader debate over alternatives to the Massachusetts plan. Moreover, while residents support the Massachusetts reform law over no change at all, they have expressed increasing skepticism that the law is working for vulnerable communities, and more residents report that the law is hurting them than helping them.

We believe that the data in this report should give pause to those concerned with national health care reform. Although not without its successes, the Massachusetts reform has not addressed the fundamental deficiencies in the health care system – treating symptoms rather than causes – and even its modest successes are unsustainable for the state and Massachusetts residents.

Tweets from Boston meeting on health, the Internet and mobile communication

Check out #chs11 f for tweet from the Connected Health Symposium in Boston. Each year, Partners sponsors this meeting to look at how the Internet and mobile communication are changing the health care system.  Here’s a link to the Tweetstream and a few samples below from a session on social networking and health.

RT @MGHDiabetesEd: “online patient communities can increase engagement, decrease isolation.” #chs11
jillplev
October 20, 2011
@taracousphd at #SoMe panel at #chs11: 35% of young people search for #healthcare informaton online
sonnyvu
October 20, 2011
Giving patients the choice to use an alias-based identity on social networks is a key way to address privacy concerns #chs11
dsgold
October 20, 2011
@dsgold How so? Alias identity does not equal unidentifiable, does it? I’d be concerned this is a false sense of security. #chs11
Dermdoc
October 20, 2011
Facebooking health @taracousphd facebook campaigns have huge opportunity for reaching teens, can use it for health literacy #chs11
connectedhealth
October 20, 2011
@lisagualtieri : There are credit #literacy programs for teenagers, why not more health literacy ones? #chs11
sonnyvu
October 20, 2011
We need to be inter-generational in our social media “prescription” including seniors as well as youth #chs11
pamressler
October 20, 2011
Social media can help make a disease more than just a disease for teens @drjosephkim #chs11
connectedhealth
October 20, 2011
@drdannysands telling about how he prescribed acor to @epatientdave & it save his life #chs11 #s4pm
pjmachado
October 20, 2011
Next up, Facebooking Health moderated by my wonderful #TUSM colleague @lisagualtieri #chs11
pamressler
October 20, 2011
@meyouhealth Chris Catter shows first ever social graph to visually render well-being among participants in social networks #chs11
dsgold
October 20, 2011
CDC traditional data tracked same as social media during H1N1 #chs11
pamressler
October 20, 2011
should MDs, nurses, etc recommend online pt communities? -yes! #chs11
ICherryBlsm
October 20, 2011

Are fears of Alzheimer’s overblown?

Margaret Morganroth Gullette’s op-ed in last week’s NYTimes dared to suggest that our fears about Alzheimer’s
may be overblown.  The Brandeis-based writer said:

 The mere whiff of perceived memory loss can have terrible consequences in an insecure economy in which midlife workers are
regularly (and illegally) laid off on account of their age. This epidemic of anxiety around memory loss is so strong that many older adults seek help for the kind of day-to-day forgetfulness that once was considered normal …Greater public awareness of Alzheimer’s, far from reducing the ignorance and stigma around  the disease, has increased it.

Today’s letters to the editor included several outraged responses

Having witnessed the disease firsthand, I can truly say there is something worse than death…I truly hope that Margaret
Morganroth Gullette and those she loves never experience the disease as my family has. I implore her not to use her public platform to minimize the horror that is Alzheimer’s.

But, Douglas Powell, described as the author “The Aging Intellect” and a psychology instructor at the Harvard Medical
School, came to her defense

Studies that followed up mildly impaired elders for three to five years found that a large minority remained stable and about 14 percent returned to normal. No one yet knows why.

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